Participate in Research

Survey
Available

Food Frequency Questionnaire

A survey for MGUS, SMM and myeloma patients about daily dietary habits to see if there is a correlation with myeloma progression or outcomes.

3 hours
Urvi Shah, MD , Memorial Sloan Kettering Cancer Center
Survey
Available

Health History: Kidney, Intestines, Skeletal, etc.

A HealthTree survey about related health conditions including diabetes, thyroid, kidney, gastrointestinal, neurological and musculoskeletal issues (including osteonecrosis of the jaw).

16 minutes
HealthTree Foundation
Survey
Available

Myeloma-Related Bone Issues

A HealthTree survey about your myeloma-related bone health.

10 minutes
HealthTree Foundation
survey
Available

Living with Lymphoma: How Fatigue Shapes Daily Life

11 minutes
Matthew J. Cortese, MD, MPH, Roswell Park Comprehensive Cancer Center
survey
Available

Understanding Multiple Myeloma Stem Cell Transplant Experiences

Patient experiences related to autologous stem cell transplants

22 minutes
Myeloma Coaches Vicki Jones, David Barton, Susan Thaul
Survey
Available

Cancer Family History

A HealthTree survey about your family's history with cancer.

10 minutes
HealthTree Foundation
survey
Available

Sexual Health of Blood Cancer Patients: Helping the birds and the bees!

Sexual health issues can arise from treatment of cancer, this study aims to document the prevalence and improve the communication between patients and care teams on this topic.

11 minutes
Gurbakhash Kaur, MD, UT Southwestern Medical Center, Rahul Banerjee, MD FACP, Fred Hutch Cancer Center, Japneet Kaur Oberoi Health Science Department at University of Oklahoma
Survey
Available

Other Myeloma-Related Issues

A HealthTree survey about myeloma-related health conditions that include neuropathy, extramedullary disease, infections and anemia.

13 minutes
HealthTree Foundation
Survey
Available

Substance Use and Environmental Exposure

A HealthTree survey about substance use and potential environmental exposures that could have caused your cancer.

7 minutes
HealthTree Foundation
survey
Available

Access, Treatment, and Trust: Understanding Disparities in Myeloma Patient Experiences

This survey aims to understand your experiences with multiple myeloma treatment and care, particularly focusing on any differences you may have encountered based on race or ethnicity. Your responses will contribute to research efforts aimed at identifying and addressing disparities in myeloma care.

28 minutes
Dr. Craig Cole and Dr. Jeff Zonder and co-investigators Christie Okoye and Jonathan C. Tyes, M.D. at Karmanos Cancer Institute, Detroit, MI
survey
Available

Breaking Barriers: Myeloma Patient Experience and Insights on Challenges in CAR T-Cell Therapy

This study aims to identify and address solvable barriers to CAR T-cell therapy for patients with relapsed and refractory multiple myeloma, improving access, support, and patient care.

11 minutes
Jenny M Ahlstrom, MS; Jay R. Hydren, PhD
survey
Available

Improving AML Care Together: Patient & Caregiver Perspectives

This survey asks about your (or your loved one’s) experience with AML—at diagnosis, during treatment, and beyond—so we can learn how to improve education, care, and support for patients and caregivers.

13 minutes
Andrew Jonas, M.D., Ph.D., UC Davis Comprehensive Cancer Center
Survey
Available

Vaccinations

Vaccinations are one of the best ways that immunocompromised patients can protect their health. However, vaccinations and vaccination schedules are not currently standardized within cancer treatment/practices. By filling out this 1-minute, 3-question survey, you can contribute to cancer research to help specialists better understand what vaccinations contribute to the best protection or outcomes for cancer patients. The information you submit is protected and private and will be shared anonymously with researchers. We value your privacy and are grateful for your contributions.

1 minute
HealthTree Foundation
Survey
Available

Health History: General & Immune

A HealthTree survey about your blood type, allergies, autoimmune conditions or chronic infections.

15 minutes
HealthTree Foundation
Survey
Available

Finance

A HealthTree survey about insurance, if you're familiar with myeloma financial assistance programs and how treatment costs affect your myeloma care.

8 minutes
HealthTree Foundation
Survey
Available

Myeloma-Related Kidney Issues

A HealthTree survey about your myeloma-related kidney issues, before, during and after treatment.

3 minutes
HealthTree Foundation
survey
Available

Cancer Patient Relationship Style and Coaching Understanding the Role of Patient Relationship Style in Cancer Coaching: Practical Application of Attachment Theory

This study aims to identify how peoples’ relationship styles relate to their different coaching needs when living with incurable cancer. The findings will be used to improve coaching and to meet the needs of diverse people.

11 minutes
Cheri Marmarosh, PhD, George Washington University; David Barton, MBA
Survey
Available

Psychosocial Disclosure Survey

A survey to learn about patients’ experiences around telling (or not telling) friends, family, coworkers, and others about their cancer diagnosis and medical issues.

15 minutes
Dr. Urvi Shah, MD and Research Team at Memorial Sloan Kettering Cancer Center
survey
Available

Peripheral Neuropathy Questionnaire for Patients Receiving Velcade (bortezomib)

A patient-driven study assessing neuropathy symptoms and their impact among individuals treated with Velcade/bortezomib for blood cancers.

14 minutes
HealthTree Foundation
survey
Available

Fixed versus Continuous Therapy, What matters most to you?

22 minutes
Deborah Stephens, DO, University of North Carolina
Survey
Available

Work and Life Status

A HealthTree survey about employment and your family living situation.

5 minutes
HealthTree Foundation
survey
Available

Clots, Care, and Consequences - Evaluating Thrombosis Prevention Strategies in Multiple Myeloma

This study seeks to understand the experiences of multiple myeloma patients with blood clots through a brief survey and analysis of their medical records to improve awareness and preventive care for this life threatening condition.

23 minutes
Douglas Sborov, MD, MS, Huntsman Cancer Institute, University of Utah, and Muhamed Baljevic, MD, Vanderbilt University Medical Center
survey
Available

Myeloma Patient Preferences and Perspectives on Intravenous (IV) and Subcutaneous (SC) Myeloma Therapies

This survey seeks to understand your preferences between subcutaneous (SC) and intravenous (IV) bispecific therapies for multiple myeloma to improve future treatment options.

25 minutes
Dr. Larry D. Anderson Jr., M.D., Ph.D., FACP, a Professor in the Department of Internal Medicine at UT Southwestern Medical Center and Director of the Myeloma, Waldenström's, and Amyloidosis Program.
survey
Available

Patient-Centered Insights on MRD Negativity: Efficacy, Regulatory Approval, and Treatment Experience in Multiple Myeloma

This study, led by Dr. Carl Ola Landgren, explores multiple myeloma patients' perceptions of MRD negativity, including its significance for treatment success, access to novel therapies, and its role in clinical trial endpoints.

12 minutes
C. Ola Landgren, M.D., Ph.D., University of Miami
Survey
Available

My Current Health

A HealthTree survey about your current health status that helps inform your personalized treatment options in HealthTree Foundation. Please keep this updated as your health condition changes over time.

6 minutes
HealthTree Foundation
survey
Available

Tired of Fatigue: Insights and Solutions for MPN Patients

This study invites people living with myeloproliferative neoplasms (ET, PV, MF) to share their experiences with fatigue—its impact, triggers, and coping strategies—through a short, anonymous survey to help improve patient support and understanding.

13 minutes
HealthTree Curehub
Survey
Available

Fitness Status

A HealthTree survey about your daily activities and fitness capabilities.

6 minutes
HealthTree Foundation
survey
Available

Flourishing in People Living with Blood Cancer

11 minutes
Dr. Cheri Marmarosh, Ph.D., ABPP, at George Washington University, and Dr. Ingrid Farreras, Ph.D., Divine Mercy University.
survey
Available

Moving Beyond Limits - Exploring Physical Activity Levels in Blood Cancer Patients

You are invited to participate in this survey to assess the physical activity levels, barriers and motivators to exercising among blood cancers patients or individuals with precursor diseases.

10 minutes
Malin Hultcrantz, MD, Memorial Sloan Kettering Cancer Center
Survey
Available

My Diagnosis: Initial and Current

A HealthTree survey regarding both your initial diagnosis as well as your current diagnosis.

9 minutes
HealthTree Foundation
Survey
Available

My Health History: Heart & Lungs

A HealthTree survey regarding your cardiovascular and pulmonary system health history.

8 minutes
HealthTree Foundation
Survey
Available

Demographics

One of the best ways to accelerate blood cancer research is to understand how to the patient population responds to different treatments. In order to best understand patient response, researchers need to understand who patients are. By filling out this 10-question, 3-minute demographic survey, you can aid researchers in answering key questions such as: do certain races or ethnicities respond differently to a specific treatment than others? Does marital status or city of origin influence disease progression? How does environmental impact or military service affect diagnosis? This is especially important in achieving a myeloma cure not just for one demographic of patients but for all, regardless of race, ethnicity, gender, military service, city of origin, or education status. Help us achieve a cure for all by contributing your information in just three minutes! Please note that before shared with researchers, your data is anonymized. We value your privacy and are grateful for your contributions.

5 minutes
HealthTree Foundation
Survey
Available

My Diagnosis: Treatment, Symptoms, and Testing

A HealthTree survey regarding your diagnosis: treatment, symptoms, and testing.

5 minutes
HealthTree Foundation
survey
Available

Bispecific Antibody Real-World Experience Study (Full Question Set)

This observational study aims to explore the real-world experiences of patients receiving bispecific antibodies as a treatment for multiple myeloma.

51 minutes
Rahul Banerjee, MD FACP, Fred Hutch Cancer Center; Caitlin Costello, MD, UC San Diego Health; Gurbakhas Kaur, MD, UT Southwestern Medical Center; Meera Mohan, MD, MS, FACP, Froedtert Medical College of Wisconsin; Francesca Cottini, MD, The Ohio State University, Comprehensive Cancer Center; Douglas Sborov, MD, MS, University of Utah, Huntsman Cancer Institute; Noopur Raje, MD, Massachusetts General Hospital; Shaji Kumar, MD, Mayo Clinic; Philippe Moreau, MD, University of Nantes, France
survey
Available

Understanding the Relapse Experience in Multiple Myeloma: A Retrospective Survey

You are invited to participate in this survey to tell your story about your first relapse. The purpose of this survey is to help improve the understanding of the experiences and decision-making processes of individuals facing their first relapse of multiple myeloma. It is also a follow-up from our comprehensive Decision-Making Survey we did in mid 2023.

12 minutes
Jay R. Hydren, PhD, HealthTree Foundation
Survey
Available

Diet and Alternative Therapy

A HealthTree survey regrading lifestyle: diet and holistic therapy.

9 minutes
HealthTree Foundation
Survey
Available

Attitudes towards and experience with cannabis use for pain management

A survey about attitudes and experience with cannabis for patients with myeloma or precursor conditions.

9 minutes
Craig C. Hofmeister, MD, MPH from Emory Winship Cancer Institute, Karen Sweiss, PharmD from University of Illinois Chicago
survey
Available

What Matters Most: Surveying Preferences of Blood Cancer Patients

This study will ask you what is most important (and what is least important) to you when thinking about outcomes of your cancer treatment.

11 minutes
Daniel Richardson, MD, MSc, UNC School of Medicine, Kevin Pignone, UNC Department of Health Policy & Management
survey
Available

From Chair Time to Life Time: The Burden of Transfusions in MDS & CMML

A HealthTree survey exploring how transfusion care affects life, work, and treatment decisions for people living with MDS.

14 minutes
Elizabeth Griffiths, MD, Roswell Park Comprehensive Cancer Center
Survey
Available

Pain Experience and Attitudes Towards Opioids for pain

A survey to better understand your thoughts and experiences regarding pain management in patients with multiple myeloma or precursor conditions.

14 minutes
Craig C. Hofmeister, MD, MPH from Emory Winship Cancer Institute, Karen Sweiss, PharmD from University of Illinois Chicago
survey
Available

Patient Perspectives on 1-on-1 Peer Coaching: Assessing the Effectiveness of the HealthTree Coach Program

This study evaluates the impact of the HealthTree Coach Program, a 1-on-1 peer support initiative for all blood cancers or precursor disease patients and caregivers, by assessing participation, barriers, and perceived benefits on well-being and treatment navigation.

14 minutes
Nadine H. Abdallah, MD, Division of Hematology, Mayo Clinic; Cheri L. Marmarosh, PhD Department of Psychology, Divine Mercy University;
survey
Available

Whole Genome Sequencing in Circulating Myeloma Cells: A Patient Survey of Value, Access, and Precision Promise

This survey asks your opinion on a new type of genetic testing called whole genome sequencing (WGS) that could help doctors choose better treatments for your myeloma based on your cancer’s unique DNA.

8 minutes
HealthTree Foundation
Survey
Available

Accelerating the Diagnosis of Myeloma-Related Amyloidosis

The purpose of this survey is to quantify the time from symptom onset to diagnosis and correlate potential delays with challenges associated with diagnosis experienced by amyloidosis patients with multiple myeloma, in partnership with Morie Gertz, MD, Mayo Clinic, Sascha Tuchman, MD, University of North Carolina at Chapel Hill, Aman Godara, MBBS, Huntsman Cancer Institute Jeffrey Zonder, MD, Karmanos Cancer Institute Giada Bianchi, MD, Harvard Institute of Medicine Heather J. Landau, MD, Memorial Sloan Kettering Cancer Center James Hoffman, MD, Sylvester Comprehensive Cancer Center

15 minutes
Morie Gertz, MD, Mayo Clinic; Nadine H. Abdallah, MD Mayo Clinic; Sascha Tuchman, MD, University of North Carolina; Aman Godara, MBBS, Huntsman Cancer Institute; Jeffrey Zonder, MD, Karmanos Cancer Institute, Giada Bianchi, MD, Harvard Institute of Medicine; Heather J. Landau, MD, MSKCC, Muhamed Baljevic, MD, Vanderbilt University; James Hoffman, MD, U of Miami
survey
Available

Multiple Myeloma Patient Experiences with the Stem Cell Collection Process

The survey will help patients and providers better understand patient experiences (challenges and burdens) related to procedures for the collection of stem cells.

17 minutes
Shaji Kumar, MD, Division of Hematology, Mayo Clinic, Rochester, MN, Surbhi Sidana, MD, Division of Blood and Marrow Transplantation & Cellular Therapy, Stanford University, Stanford, CA, Joshua R Richter, MD, Mount Sinai, Blavatnik Family- Chelsea Medical Center, New York, NY
Survey
Available

Health History: Surgeries, Other Cancers, Mental Health

A HealthTree survey about past surgeries, other cancer diagnoses you may have, and any other related mental health concerns.

45 minutes
HealthTree Foundation
Survey
Available

Heart and Metabolic Family History

Heart and Metabolic Family History Survey

8 minutes
HealthTree Foundation
study
Available

Personalized treatment strategies based on genetics at diagnosis

The Division of Myeloma at the University of Miami is actively working on new strategies that could tailor treatment to the individual patient's disease biology to improve outcomes, and potentially identify potential curative approaches for individual patients.

40 seconds
Ola Landgren, MD, PhD, University of Miami
Survey
Available

Transportation

This survey asks questions regarding your cancer-related travel. Your participation is appreciated!

4 minutes
HealthTree Foundation
Survey
Available

Eye Health and Multiple Myeloma

Help Us Explore the Connection Between Eye Health and Multiple Myeloma! Did you know that treatments for Multiple Myeloma (MM) and its early stages (MGUS and SMM) might affect our eyes? Some patients experience conditions like cataracts or glaucoma, and we want to understand why. This study is led by Dr. Rahul Banerjee (University of Washington) and Dr. Andrew J. Cowan (Fred Hutchinson Cancer Center), and they believe your insights can make a difference. Together, we can pave the way for better eye care for MM patients.

9 minutes
Rahul Banerjee, MD and Andrew Cowan, MD, Fred Hutchinson Cancer Center
survey
Available

CLL Treatment Experience Survey: Patient Insights 2026

A brief online survey exploring CLL patient treatment experiences, preferences, and goals to improve patient education and advocacy.

11 minutes
Jay R. Hydren, PhD, HealthTree Foundation in collaboration with Dana Wills, PeerView Health
Survey
Available

Key Decision-Making Factors for Myeloma Patients Changing Therapy

A survey to understand your decision-making process for your next therapy, especially as there are so many multiple myeloma treatment options available today.

24 minutes
Rafael Fonseca, MD from Mayo Clinic, Ola Landgren, MD from Sylvester Comprehensive Cancer Center, Sagar Lonial, MD from Emory Winship Cancer Institute, Robert Orlowski, MD from Anderson Cancer Center, and Saad Usmani, MD from Memorial Sloan Kettering Cancer Center
survey
Available

Your Smoldering Myeloma Journey: Diagnosis, Monitoring, and Management

This study aims to understand how smoldering multiple myeloma (SMM) is monitored and treated in the real world by gathering patient-reported data on their experiences and views on early treatment.

17 minutes
S. Vincent Rajkumar, MD; Nadine H. Abdallah, MD; Joselle M. Cook, M.B.B.S; Mayo Clinic, Rochester, MN