Participate in Research
Sexual Health of Blood Cancer Patients: Helping the birds and the bees!
Sexual health issues can arise from treatment of cancer, this study aims to document the prevalence and improve the communication between patients and care teams on this topic.
Access, Treatment, and Trust: Understanding Disparities in Myeloma Patient Experiences
This survey aims to understand your experiences with multiple myeloma treatment and care, particularly focusing on any differences you may have encountered based on race or ethnicity. Your responses will contribute to research efforts aimed at identifying and addressing disparities in myeloma care.
Breaking Barriers: Myeloma Patient Experience and Insights on Challenges in CAR T-Cell Therapy
This study aims to identify and address solvable barriers to CAR T-cell therapy for patients with relapsed and refractory multiple myeloma, improving access, support, and patient care.
Improving AML Care Together: Patient & Caregiver Perspectives
This survey asks about your (or your loved one’s) experience with AML—at diagnosis, during treatment, and beyond—so we can learn how to improve education, care, and support for patients and caregivers.
Vaccinations
Vaccinations are one of the best ways that immunocompromised patients can protect their health. However, vaccinations and vaccination schedules are not currently standardized within cancer treatment/practices. By filling out this 1-minute, 3-question survey, you can contribute to cancer research to help specialists better understand what vaccinations contribute to the best protection or outcomes for cancer patients. The information you submit is protected and private and will be shared anonymously with researchers. We value your privacy and are grateful for your contributions.
Cancer Patient Relationship Style and Coaching Understanding the Role of Patient Relationship Style in Cancer Coaching: Practical Application of Attachment Theory
This study aims to identify how peoples’ relationship styles relate to their different coaching needs when living with incurable cancer. The findings will be used to improve coaching and to meet the needs of diverse people.
Psychosocial Disclosure Survey
A survey to learn about patients’ experiences around telling (or not telling) friends, family, coworkers, and others about their cancer diagnosis and medical issues.
Clots, Care, and Consequences - Evaluating Thrombosis Prevention Strategies in Multiple Myeloma
This study seeks to understand the experiences of multiple myeloma patients with blood clots through a brief survey and analysis of their medical records to improve awareness and preventive care for this life threatening condition.
Myeloma Patient Preferences and Perspectives on Intravenous (IV) and Subcutaneous (SC) Myeloma Therapies
This survey seeks to understand your preferences between subcutaneous (SC) and intravenous (IV) bispecific therapies for multiple myeloma to improve future treatment options.
Patient-Centered Insights on MRD Negativity: Efficacy, Regulatory Approval, and Treatment Experience in Multiple Myeloma
This study, led by Dr. Carl Ola Landgren, explores multiple myeloma patients' perceptions of MRD negativity, including its significance for treatment success, access to novel therapies, and its role in clinical trial endpoints.
Tired of Fatigue: Insights and Solutions for MPN Patients
This study invites people living with myeloproliferative neoplasms (ET, PV, MF) to share their experiences with fatigue—its impact, triggers, and coping strategies—through a short, anonymous survey to help improve patient support and understanding.
Moving Beyond Limits - Exploring Physical Activity Levels in Blood Cancer Patients
You are invited to participate in this survey to assess the physical activity levels, barriers and motivators to exercising among blood cancers patients or individuals with precursor diseases.
Demographics
One of the best ways to accelerate blood cancer research is to understand how to the patient population responds to different treatments. In order to best understand patient response, researchers need to understand who patients are. By filling out this 10-question, 3-minute demographic survey, you can aid researchers in answering key questions such as: do certain races or ethnicities respond differently to a specific treatment than others? Does marital status or city of origin influence disease progression? How does environmental impact or military service affect diagnosis? This is especially important in achieving a myeloma cure not just for one demographic of patients but for all, regardless of race, ethnicity, gender, military service, city of origin, or education status. Help us achieve a cure for all by contributing your information in just three minutes! Please note that before shared with researchers, your data is anonymized. We value your privacy and are grateful for your contributions.
Bispecific Antibody Real-World Experience Study (Full Question Set)
This observational study aims to explore the real-world experiences of patients receiving bispecific antibodies as a treatment for multiple myeloma.
Understanding the Relapse Experience in Multiple Myeloma: A Retrospective Survey
You are invited to participate in this survey to tell your story about your first relapse. The purpose of this survey is to help improve the understanding of the experiences and decision-making processes of individuals facing their first relapse of multiple myeloma. It is also a follow-up from our comprehensive Decision-Making Survey we did in mid 2023.
Attitudes towards and experience with cannabis use for pain management
A survey about attitudes and experience with cannabis for patients with myeloma or precursor conditions.
What Matters Most: Surveying Preferences of Blood Cancer Patients
This study will ask you what is most important (and what is least important) to you when thinking about outcomes of your cancer treatment.
Pain Experience and Attitudes Towards Opioids for pain
A survey to better understand your thoughts and experiences regarding pain management in patients with multiple myeloma or precursor conditions.
Patient Perspectives on 1-on-1 Peer Coaching: Assessing the Effectiveness of the HealthTree Coach Program
This study evaluates the impact of the HealthTree Coach Program, a 1-on-1 peer support initiative for all blood cancers or precursor disease patients and caregivers, by assessing participation, barriers, and perceived benefits on well-being and treatment navigation.
Whole Genome Sequencing in Circulating Myeloma Cells: A Patient Survey of Value, Access, and Precision Promise
This survey asks your opinion on a new type of genetic testing called whole genome sequencing (WGS) that could help doctors choose better treatments for your myeloma based on your cancer’s unique DNA.
Accelerating the Diagnosis of Myeloma-Related Amyloidosis
The purpose of this survey is to quantify the time from symptom onset to diagnosis and correlate potential delays with challenges associated with diagnosis experienced by amyloidosis patients with multiple myeloma, in partnership with Morie Gertz, MD, Mayo Clinic, Sascha Tuchman, MD, University of North Carolina at Chapel Hill, Aman Godara, MBBS, Huntsman Cancer Institute Jeffrey Zonder, MD, Karmanos Cancer Institute Giada Bianchi, MD, Harvard Institute of Medicine Heather J. Landau, MD, Memorial Sloan Kettering Cancer Center James Hoffman, MD, Sylvester Comprehensive Cancer Center
Multiple Myeloma Patient Experiences with the Stem Cell Collection Process
The survey will help patients and providers better understand patient experiences (challenges and burdens) related to procedures for the collection of stem cells.
Personalized treatment strategies based on genetics at diagnosis
The Division of Myeloma at the University of Miami is actively working on new strategies that could tailor treatment to the individual patient's disease biology to improve outcomes, and potentially identify potential curative approaches for individual patients.
Eye Health and Multiple Myeloma
Help Us Explore the Connection Between Eye Health and Multiple Myeloma! Did you know that treatments for Multiple Myeloma (MM) and its early stages (MGUS and SMM) might affect our eyes? Some patients experience conditions like cataracts or glaucoma, and we want to understand why. This study is led by Dr. Rahul Banerjee (University of Washington) and Dr. Andrew J. Cowan (Fred Hutchinson Cancer Center), and they believe your insights can make a difference. Together, we can pave the way for better eye care for MM patients.
CLL Treatment Experience Survey: Patient Insights 2026
A brief online survey exploring CLL patient treatment experiences, preferences, and goals to improve patient education and advocacy.
Key Decision-Making Factors for Myeloma Patients Changing Therapy
A survey to understand your decision-making process for your next therapy, especially as there are so many multiple myeloma treatment options available today.
Your Smoldering Myeloma Journey: Diagnosis, Monitoring, and Management
This study aims to understand how smoldering multiple myeloma (SMM) is monitored and treated in the real world by gathering patient-reported data on their experiences and views on early treatment.