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My Journey: Diagnosis at 39, Fractures & Walking Again
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Hi. I'm from the UK, I was diagnosed in covid 2020. And had VCD chemo then DT-Pace chemo's in 2021 and then a stem cell transplant in January 2022. And then currently in full response, I still have to have blood tests and results every three months and have to take lenalidomide once a night for 3 weeks on and 1 week off and of course aspirin to go alongside of it. Anyone else here for the UK? I know that there are quite a few people who suffer from it in the UK so asking :-) I forgot yesterday to put I was diagnosed at 39 years old. It's strange because Myeloma used to be an older persons illness (I hate the word disease) and it now seems to attack anyone 30+. I have 6 wedge type fractures in my vertabre. Ironically 2 at the top, 2 middle and 2 near the bottom. I have to walk most days with a walking stick. To go from walking 15 miles a day to barely a mile and even then needing a stick is stupid. Although I was in a wheelchair for 4 months at one point and my now retired haematologist consultant said I would never walk again because of the damage that the cancer did to me, I said well Dr with respect you don't know me so I will tell you give me a max of 6 months and I may struggle but I will walk into your office. And I did 4 months to the day nearly. He annoyed me so much that I wanted to prove he didn't know everything. And then he retired a few months after my stem cell transplant. Now my consultant is a lovely German lady called Sylvia. Granted she doesn't do humour but she knows her job and actually said that my old consultant had no right to say if I would end up in a wheelchair the rest of my life or not. It wasn't his place. Granted with the vertabre issues I have it may lead to it one day but it's highly unlikely if I'm careful.
Anyway there is a little low down on me and my journey. If you want to ask me anything please do I'm quite open. Just in case. I don't do shying away from anything. :-) Also thanks for allowing me here :-)
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