I have been reading articles and medical journals about Multiple Myeloma. In 3 separate studies the patient had weakness in lower extremities; spinal compression; urine retention; constipation and most states they were not diagnosed until they began to have bone pain. My husband had weakness in lower extremities first - walked like he was drunk. He has been on a cane ever since approximately 2.5 years now. We went to our orthopedic doctor who referred us to the spine surgeon, who did an MRI and said he needed surgery right away. He had 7 levels in his cervical/thoracic spine opened up and pins and screws placed. After surgery (October will be 2 years) he began having urine retention to where I had to rush him to the ER because he was in so much pain. They did a prostate biopsy but the doctor came out and said no cancer prostate was a little enlarged but nothing an increase in his Flomax wouldn’t help. He continued to have issues. He would go to the ER they would put a catheter in and he would follow up with urologist 7-10 days to remove the catheter. His urologist referred him to Nephrologist who did a kidney biopsy and a boatload of lab work. 10 days following the labs he called and told him about the Myeloma. A couple weeks following that he called and said the biopsy confirmed the diagnosis. So they set him up with the hematologist/oncologist that he saw a couple weeks ago. He said he wanted a bone marrow biopsy (done), a bunch of labs he will do Monday and then he was to have a PET scan on Monday as well but of course the hospital called and said scan is down and rescheduled to the 19th. So I’m scared to death to say the least because we don’t have a treatment plan. The oncologist said he would like to work on the chronic kidney disease (just diagnosed with that) first to keep him out of dialysis and then he will work on the Myeloma. But I need details. Like is this treatment going to make him weaker and sick and in pain? My other questions are about the doctors who saw him these past 2+ years-was there any way they all could’ve saw this coming? The spine surgeon wouldn’t even come in the room for his 1 year follow up. We see his PA. Like he doesn’t have time for us to tell him that him telling us “this surgery is going to make you feel so much better” was a crock of shit. He got worse. Why didn’t they refer him to another doctor if he didn’t know?? I’m just a scared, very frustrated wife of 35 years. I cannot lose my best friend. I know I posted a lot of photos but this is my family who all depend on their dad/pop. They only know him as being strong and invincible. Can anyone help me to understand what might be getting ready to happen? I would appreciate any feedback/advice.