Community post
Talqutamab + Dara
Hi all,
My husband is going on 4 years since being diagnosed. Myeloma attacked his kidneys when he was diagnosed and was in renal failure. They missed it with Covid. The great news is after dialysis for months and then healing, his creatinine is in the normal range now. A true medical miracle.
He has two types 414 and another mutation. He had a stem cell that lasted 7 months and car-t that lasted 4 months. Both difficult treatments. He always remains so positive.
He has been on a combination of Talq * Dara and he has a fantastic Dr at Cleveland Clinic. Dr Jack Khouri. He is the absolute BEST. Treatment has worked but has come at a huge cost. His nails are deformed and he hasn’t been able to taste in 2 years with the exception of orange Crush. Is anyone else on this combination and what side effects have you experienced?
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