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JohnnyV
Multiple Myeloma Discussion • May 7, 2025
My Story: A Full Life After Diagnosis & Setbacks
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I was diagnosed with MM on Aug 22, 2018 on the morning of my 61st birthday. I was shocked because I didn’t feel sick. I had a back ache that just wouldn’t go away. It was my kidney in stage 4 failure. I was on the top of my career and felt I could overcome this and return to work. I started treatment immediately and was doing well when my colon burst. They couldn’t treat me because of the chemo so I was in the hospital being treated with antibiotics until my condition enabled me to have surgery to remove 12” of colon and repair my intestinal track. I returned to chemo shortly after and was preparing for my stem cell transplant. In March of 2019 I had the transplant, unfortunately it only lasted for 8 months. Back to the infusion lab and start of a new treatment. Fast forward to today, I’m retired and doing very well. We bought a motor home and enjoy traveling throughout the country. I’m doing so well I can take chemo holidays to travel. I spend my time now doing a prison ministry, visiting nursing facilities and playing with grand kids. I go for monthly chemo (Dara) and take palmalyst 21 days followed each infusion. I take many vitamins and have a diet that keeps me going. My life today is good and I m not limited in what I can and want to do. My wife has been the best caregiver I could have ever wished for. She does all the research and keeps my Doctor informed. Life is short in the big picture and I have dedicated my life to service.
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