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IceBane Q
Multiple Myeloma Discussion • August 10, 2023
Seeking Advice on First Treatment Decisions
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Hi all, I just received a light chain Myeloma diagnosis last week. It is scary but, it is partially a relief to finally know what has been causing my recent health problems (extreme hypertension, Stage 3 Kidney disease and strong fatigue and shortness of breath) . I'm 51 and my condition is advanced enough that my oncologist seems to be recommending immediate chemotherapy followed by stem cell transplant within a few months..... I'm overwhelmed with the different types of treatment offered and concerned about making such important life altering decisions right away although I understand the urgency to treat early. I will be going to get a 2nd opinion and see a Myeloma specialist, Dr. Waxman, at the University of Pennsylvania tomorrow and hope to learn more about treatment options. I have a couple questions..... 1) To those who have been through treatments...In hindsight, what do you wish you would have known when first diagnosed ?? 2) Is it wise to jump into chemotherapy and Stem cell transplants right away or are there other treatment options that you might recommend that I should consider first ( I realize this question is extremely difficult to answer) . Any advice you can share with a noob is greatly appreciated. Thank you!
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