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Sharing Hope: Mom's Journey to Remission
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Hello all. I thought of sharing my mom's journey since being diagnosed with Lamba light chain MM in April 2023 at 60 years old. I hope to help or give someone hope just as some of your stories did to us. Her FISH test was normal and a few small bone lesions around her body per her PET scan. She started her treatment with a MM specialist at UCI in Orange, CA in June 5. Since my mother wanted to avoid having to get a blood transfusion as much as possible, her doctor slowly started her on Dexamethasone first for two weeks, then every week or two Velcade, then Revlimid and lastly Daratumumab by July 11 her doctor confirmed she was in a complete remission 2-3 months earlier than average according to her doctor. Although she did felt tired, fatigue at some times, specially after her infusions days once a week she did not have major side effects. We believe what helped her the most was her low carb and low sugar diet, taking daily vitamins D, B12, B complex, Iron, Folic acid, Vitamin D, and her green juice Beetroot juice every other day. She also takes IV iron and vitamins every week which are a big help with hydration and energy boost to withstand the treatment without interruptions and major side effects. The next step her doctor is recommending is an Autologous Stem Cell Transplant (ASCT) soon. We are hopeful but scared for this next challenge.
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