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Samantha
Multiple Myeloma Discussion • July 11, 2025
Feeling Unheard: How to Get a Proper Diagnosis?
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I very strongly believe I have a myeloma/blood cancer. My doctor dismisses my concerns or argues with me. Everything is fibromyalgia to him - I know this is not. I’ve asked him to send me for a PET scan and he’s told me he would be the laughing stock of his colleagues if he sent me for one. He has also ‘educated’ me on 2 occasions that he has ‘been doing this’ (practicing family medicine) for 20 years and would know cancer if he saw it. In the interim, my left leg hurts every single night for the last 18 months, my spine and now my hip/buttocks. I suffer from daily headaches for the last year in the frontal area of my forehead bone. This is my second doctor. I feel that I am not believed. I am judged by how I appear on the outside - not what I am on the inside. My bloodwork usually comes back fairly normal (not entirely). I’m too young to die. I have a daughter who depends on me and an elderly dad with Stage 4 cancer. I desperately need an oncologist to examine me or a bone biopsy or a PET scan… I’m tired of being in pain, and tired of the fear of what is happening to my body while I sit on the sidelines and just wait. I pray that I finally will be listened to. This isn’t right. Not in this day and age. Is there a doctor out there who can help me, please? Samantha, Toronto, Canada
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