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Akbar
Multiple Myeloma Discussion • December 18, 2023
Managing Low Phosphorus - Any Experiences?
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Hi Everyone! At the end of October 2018, I was diagnosed with Multiple Myeloma (Lambda light chain). Since my stem cell transplant on April 28, 2019, I have been taking 15MG Revlimid 21 days out of 28 days a month and receiving Velcade every two weeks as a maintenance treatment. It was about 6 months ago that my Phosphorus levels started to decrease below normal levels, so my specialist prescribed Phospha 250 Neutral to take 3 tablets a day. However, this did not increase my levels, so I was instructed to take 6 tablets a day with no improvement. After seeing my nephrologist, I was told that the issue with my phosphorus levels was caused by my kidneys disposing of phosphorus due to the heavy chemotherapy I had prior to my transplant. The doctor recommended I take two tablets of Phospha 250 Neutral three times a day and be tested for phosphate levels periodically, and when they are low, I should get Phosphate infused. Would anyone be able to tell me if they have had/have similar issues and how they resolved them?
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