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Stevonmfl
Multiple Myeloma Discussion • November 23, 2023
Considering CAR-T: Weighing Side Effects vs. Benefits
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I am ultra hi-risk smoldering MM w/1q21, 1q22 and q32 so I'm going to become active sooner than later. On list for clinical trial using Car-t at Dana Farber as a first and last resort. Right now I get daytime bouts of weakness and being unsteady and already have neuropathy but mostly under control. At 74 years old, I just want to live a few more years in a somewhat normal fashion but am just as afraid of Car T side effects as I am the disease and wonder if better off just not doing Car T.
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