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Pheba1
Multiple Myeloma Discussion • June 19, 2025
Dealing with Infection & Maintenance Questions?
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Diagnosed with MGRS/MM in October 2023. Four months induction with four drug regimen, Stem cell May 2024. Can't believe it has been a year. On Darzalex and Revlimid. I picked up a head cold on May 3, most likely an enterovirus or rhinovirus. This thing is evil. Hubby had it and 3 weeks later is still coughing. I am still coughing going on 8 weeks. I called oncologist a week ago and told him about cough. He scheduled an IVIG transfusion. 4 days ago I woke up with swelling on right side of face. The swelling became worse and worse So, yesterday I had hubby drive me to oncologist. NO appt. I just showed up. Oncologist (yes, he is a great physician), sent me for CT scan of head. I have a Parotid infection, so on antibiotics, two very strong antibiotics. The virus has morphed into an infection. Sorry for the long explanation. Here are my questions. Has anybody else been through something like this? Also, my oncologist says if this keeps up he is going to change my drug regimen. Are there other regimens for follow-up chemo besides Darzalex and revlimid. I believe they are treating aggressively because my FISH study shows 3 very bad chromosomes that put me at high risk of a double hit, or a secondary cancer. Thanks
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