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Navigating MM with Liver Disease & No ASCT
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Feeling lost. My husband was diagnosed with MM-Lambda Light Chain in December. It was quite a shock, but we eventually wrapped our brains around it and felt comfort knowing there was a clear path ahead. He started on DRVd and has been responding well (over 90% disease burden reduction so far), so we assumed he would be doing his ASCT soon. However, we also recently found out he has another disease, called Hemochromatosis, which causes an iron overload and can damage the liver. Unfortunately, upon his screening, we were told his liver was in a compensated cirrhosis stage from the disease so ASCT would no longer be an option. As a result, his DRVd regimen will be extended two more cycles, he will then switch to maintenance, and we’ll just hope for the best. I feel overwhelmed now because his situation is so unique and isn’t following the normal course of DRVd to ASCT to Maintenance. Before this latest bombshell, I was finding a sense of belonging, hope and comfort from other people’s stories, but now I don’t know where we “fit” anymore. I guess I’m just looking for others who may have experienced another significant co-morbidity, such as liver disease, and still managed to do well.
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