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From Kidney Failure to Remission: My SCT Journey
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I was diagnosed in August of 2023. I went to ER in late July, had been vomiting, eating very little and generally feeling bad. I had been bitten by a tick in June and found out later that the symptoms I had, while similar to Lyme disease (from the tick bite), are also like MM. In ER, after multiple tests, I was told my kidneys were failing, and I was transferred to another hospital to start dylasis. I was on dylasis for 3 months, but because of God's blessing, my kidneys recovered enough, so I came off dylasis. I needed to do 2 stem cell collections, not getting enough the first time, but the second time, i harvested enoug! Had my SCT in April and am in remission. My 100 days will be up at the end of July. I've been working a couple of days a week, few hours each day... good therapy for me. (I work in the court system, and, since COVID, my door is locked and i can talk to attorneys through a video/audio system.) In the last few weeks, I've been feeling much better... not as much fatigue nor pain. I did get a state issued canibas card and have found the edibles are good for the bone pain. An MRI in May revealed I have new spinal fractures but can't have kyphoplasty until after the 100 days. It's so good to feel better! Hang in there, friends. We're in this together, and there are lots of discoveries being made in this field.
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