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Experiencing Carpal Tunnel, Amyloidosis Link?
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I am 8 months post Car T/Carvykti, doing well. MRD negative, blood counts coming back very slowly. I have always struggled with some wrist issues, due to ulnar impact syndrome (ulnar bone in wrist too long and over time causes pain/damage from the impact- basically bones in my wrist are too long). In July , just a few months post Car T I started to have alot of wrist pain/weakness. I have been doctoring with an orthopedic as these aren’t new issues. The pain/numbness in my hands got so bad about a month ago I had an EMG which showed moderate carpal tunnel on my right hand and mild on my left hand. Very odd to basically develop carpal tunnel over such a short amount of time. Today when seeing my MM specialist he mentioned that there is a connection between Amyloidosis/MM and carpal tunnel. The carpal tunnel is basically a precursor to amyloidosis and he advised that if I have the carpal tunnel fixed to be sure they do a biopsy of the tissue to test for amyloidosis. I was very surprised by this connection and started to do some research but curious if anyone has had the experience to develop carpal tunnel and then eventually amyloidosis.
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