REally consider getting long term care insurance. Wish we had as now up a creek. Didn't realize assisted living places require u to bring your own furniture. I've stopped treatment as got very sick after sarclisa/kyprolis 2 weeks ago. Was handling it ok till they gave both in same day. I've been fighting this disease for 10 yrs and am tired, cant' drive now, very weak. My beloved has also become ill due to all the stress, neither of us able to drive and no one to help. Bad situation...Some times this disease causes one to linger and that gets very expensive and stressful. We just keep trying our best. Caregiver agencies require 4 hour minumum to come to the home and who wants a stranger sitting in their home that long esp with risk of covid, etc. Atleast insurance covers inhome nursing but doesnt' reallly help with caregiving or food, etc.