Community post
Struggling for a Say in Your Treatment?
AI-generated title
Is your Myeloma specialist forceful with treatment decisions (e.g. my way or the highway), or is it just mine? My experience with my oncologist is he walks into the room and says this is what we are doing! He literally tells me if I don't want to listen to him, I'm more than welcome to go elsewhere (it's either I go with his plan or I go somewhere else; he's not interested in hearing my opinion). During induction therapy when my disease stopped responding to the four drug regiment (Dara, velcade, dex, and Revlimid), he tried to force me to start taking kyprolis, even though I kept telling him I was not comfortable with taking that drug because of the potential heart toxicity side effect. We got into a shouting match over it, until he finally backed down and said there was something else he could put me on. He eventually put me on venetoclax, and like magic, it drastically drove down my M-spike in just a few weeks and I was able to undergo stem cell transplant right away....
Have you experienced similar dynamics this with your mm specialist where they aggressively try to force you into going along with their treatment plan without giving you the opportunity to be involved in your own care? It makes me feel like my oncologist is driven by a secret motive such as meeting a quota or conducting an experiment or something
🤔
No comments yet.