Community post
Sharing Our Journey With Resistant Myeloma
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Hi my name is Mildred and my husband was diagnosed with multiple myeloma cancer on December 2019 and the journey began that same day because of how advanced his cancer was at that particular time.
We started chemo the day he was diagnosed and almost seemed like it was right away the Dr started to prepared him for a "bone marrow transplant" 3 months after being in treatment.
Unfortunately a week before the transplant he was diagnosed with COVID March 2020
needless to say he was hospitalized at a time in which people nor Drs knew what to do about it but he was in the hospital for 10 days.
When he made it home was a race with his treatment and making sure he was eating clean in order to put the bone marrow transplant on the table again and in May 2020 he received it and it went well,he was home in 2 weeks.This treatment was important to us because it could give him
2-3 years when initially he was giving 9-12
months but unfortunately 8 months later the cancer was active again so a combination of different meds was giving to him as well as different blood test and that's when we realized that he is "high risk". resistant to treatment.
They tried different meds and 15 months ago
He was giving "cart-T cell in a clinical trial that ended a month ago and his team said that they have nothing else for him despite of him developing a secondary cancer (Prostate cancer) but they would see him for blood work every 3 months to track the status of both cancer.
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