Community post
Connecting on Relapsed t(4;14) Treatment
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Hi there,
I would like to get in touch with a MM "Colleague" who is also diagnosed with t(4;14) which potentially qualifies as High Risk - and who has relapsed. What is your experience with treatment after relapse? Clinical Trials, regular treatment, etc.
After nearly four years of MRD negative (as guessed by my physician; "guessed" because MRD is not allowed in Holland/Europe), I relapsed sometime in December 2022. At the moment, I am in a wait-and-see stage. My physician managed to make his/our hospital eligible for a clinical trial - MonumenTAL - a bispecific - from Janssen & Janssen. Although the M-Protien was low (3.7) at the last blood test, I feel that my body is slowly giving in to the pressure. I increasingly suffer from bone pain, especially in my hip.
Anyway, hope somebody will share his or her experience. And maybe we can go through this ordeal together.
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