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SiemVeldboer
Multiple Myeloma Discussion • August 5, 2023
Sharing Experiences With Talquetamab?
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Hi, Anybody out there who has experience with Johnsson & Johnsson's Talquetamab? As of 17th of july 2023 I entered the "MonumenTAL" study. A Phase III study in which a combination of drugs is being examined to see if Talquetamab is more effective when not administered on its own. I do suffer from serious side effects. Rash and an itchy skin all over my body, total loss of taste and significantly increased liver and gall blood values. Whether the treament has any impact on the disease I do not know. Oddly enough there have been no blood tests so far investigating the value of M-Proteïne and FLC. My iliac bone on the left side hurts tremendously. I can barely walk. Which is one of my favourite past times. I fear this bone ache has nothing to do with the "MonumenTAL" study. Please, do share your experience with Talquetamab. Whether it has been in a Phase 1, 2 or 3 study.
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