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Managing Severe Neuropathy: Seeking Hope & Tips
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I was diagnosed with MM a couple years ago and did several cycles of Revlimid/Velcade/Dexamethasone. It did what it was supposed to do and brought my m-protein level down to where it was almost undetectable but I had to stop because the ve!cade caused severe neuropathy in my feet. I stayed on low dose Revlimid as "maintenance therapy" but my m-protein level has started to steadily climb so I am getting a second opinion on a couple weeks from a MM specialist at Uof M because my oncologist wants to start me on Pomalyst/Darzalex/Dexamethasone and I'm hesitant due to the almost debilitating neuropathy I've been left with. I am 73 years old and chose not to have SCT. My cell counts remain good but I'm fearful all the time that will change without aggressive treatment.
Has anyone dealt with severe neuropathy in their feet? I've tried everything I can think of to relieve it. Medication hasn't helped (neurontin/lyrica/cymbalta etc ) so I stopped those and every over the counter cream/oil/soak/gummie/acupuncture / massage......etc etc etc
I need some input from people who have experienced the same thing. I fight feeling defeated every day.
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