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Iliana • Admin
Multiple Myeloma Discussion • March 19
A Patient's Story of Self-Advocacy
“My innovation moment came when I successfully became my own advocate.” At 70 years old, living with IgG Lambda multiple myeloma, Nancy took a different approach to her care, one rooted in knowledge, intention, and self-advocacy. By studying immunology, she was able to clearly define her goals: maintaining balance in her body while supporting effective cancer surveillance, and prioritizing quality of life alongside treatment. Her journey hasn’t been linear. After years of slow progression, a serious fall led to multiple fractures and a peak in disease activity. Treatment brought her into remission, but what followed was a more measured approach—one that values low-dose therapies, time off treatment to rebuild, and careful attention to how her body responds. Nancy also faced challenges with treatment-related side effects, reinforcing her belief in making thoughtful, personalized decisions about her care. For her, innovation isn’t just about new therapies; it’s about understanding your body, asking questions, and having the confidence to stand by your choices. Her story is a powerful reminder that innovation in myeloma lives not only in research, but in the everyday decisions patients make. 💬 What was your innovation moment? Share with us in the comments.
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