Community post
A Patient's Story of Self-Advocacy
“My innovation moment came when I successfully became my own advocate.”
At 70 years old, living with IgG Lambda multiple myeloma, Nancy took a different approach to her care, one rooted in knowledge, intention, and self-advocacy. By studying immunology, she was able to clearly define her goals: maintaining balance in her body while supporting effective cancer surveillance, and prioritizing quality of life alongside treatment.
Her journey hasn’t been linear. After years of slow progression, a serious fall led to multiple fractures and a peak in disease activity. Treatment brought her into remission, but what followed was a more measured approach—one that values low-dose therapies, time off treatment to rebuild, and careful attention to how her body responds.
Nancy also faced challenges with treatment-related side effects, reinforcing her belief in making thoughtful, personalized decisions about her care. For her, innovation isn’t just about new therapies; it’s about understanding your body, asking questions, and having the confidence to stand by your choices.
Her story is a powerful reminder that innovation in myeloma lives not only in research, but in the everyday decisions patients make.
💬 What was your innovation moment? Share with us in the comments.
No comments yet.