Community post
Seeking MM Doc for Proactive Side Effect Management
AI-generated title
My husband is 3 1/2 years into IgG Lambda light chain MM treatment by a myeloma specialist at a notable cancer (all types) center in California. We're looking for a doctor who relies not only on the science but also on situational analysis and personal judgment. Where can we go to find out how many MM patients a specialist actually treats? Hematologist-Oncologists treat a number of blood diseases and their practice may include only a handfull, at best, of MM patients. We're on a hunt for 1) a specialist who treats as many MM patients as possible and 2) a specialist who is interested enough in patient side effects to use the available tools to mitigate them based on patient status, not on a standardized protocol. We are able to relocate anywhere in the US.
We would settle for a specialist with only a few MM patients who is proactive about using IVIG, blood transfusions, medications and blood building methods. After 5 hospital admissions for pneumonia the first year of treatment none of these were offered. When we asked for IVIG it was refused because my husband wasn't sick enough based on a standardized protocol.
Please note: We are not looking for a 'nice' doctor. Ours is nice enough. We are looking for an interest and willingness to do what's best for the patient in side effect management.
Do you have a personal experience with a MM Hematologist-Oncologist who thinks outside the standard protocol box and is proactive in terms of managing actual and predictable side effects?
Many thanks for your comments.
No comments yet.