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Seeking Transplant Peers for My Mum (74)
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Hi all, my Mum 74, is possibly heading in for a transplant in April/May. Its been a very fraught and challenging decision to make for us for a variety of reasons, but the 3 big ones are
1. Here in India transplants in patients her age is virtually unheard of and all the specialists we consulted with were largely discouraging.
2. We will have to travel to the US for the transplant which just adds to all the anxiety and its very difficult to feel "ready" for something that is so FAR away both in terms of actual distance but also in that the reality of it is not HERE.
And while she is baseline eligible she still needs the more comprehensive evaluation to know if we should/could go ahead.
3. She hasnt been able to connect to a lot of other MM folks her age and who have gone through transplant around her age. We've been able to talk to 2-3 folks but I think to her thats not been enough to build her confidence. I think what she needs is to be able to see herself in someone else and see that if they got through it so can I.
I'd really really love for her to be able to talk to more people who are on the other side of this who can give her an honest take on what their experience was like, good bad ugly so she knows what she has to prepare herself for from people who got through it!
So we can embark on this fully ready!
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