Community post
Avatar
nancynomad
Multiple Myeloma Discussion • February 19, 2024
Seeking MM-Savvy PT/Spine Doc in Chapel Hill/Durham?
AI-generated title
I was diagnosed with MGUS in 2009 and lambda IgG MM Jan 2023. I had fallen hard on a concrete floor Oct 2022 and broke my radius and ulna in my left wrist. Within a month, my ribs were hurting, followed by my back. A PET scan mid-Jan revealed multiple lesions on my ribs and a vertebral fracture and by the end of Jan 2023, I was hospitalized for four vertebral fractures. I was treated with kyphoplasty and then went through 9 months of D-RVd (although actually I went from 40 to 20 mg of dexamethasone in three months and quit dexamethasone entirely within 6 months.) I needed another kyphoplasty on another fractured vertebra in April. My M-spike has been reduced from 4.7 to 0.2 g/dL and has been stable since September. A PET scan in Oct showed I probably had had at least one more fracture in between April and Oct, but the scan showed all fractures and lesions and fractures were healed or healing. I have been trying to build strength carefully on my own, but I still need to lie down several times a day and still feel better with a lumbar support binder and a natural posture brace. It seems to me that there has to be others with MM who need special help with their backs. I would like some good PT, but I don’t want to just try someone blindly as I suspect the fractures after hospitalization were from PT, both rehab and after. My oncologist / palliative care team have been unable to recommend anyone specifically. Does anyone know of a good PT in the Chapel Hill / Durham area that they can recommend? Or a good spine doctor, familiar with MM?
Avatar

No comments yet.

Related Content