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Bone Med Options for High ONJ Risk?
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Hi, I am very new to the world of multiple myeloma and have just gotten a positive MGUS result, but no further testing at this point. Because I am also newly diagnosed with osteoporosis, my doctor wants me to take bisphosphonates. I have Achalasia (disorder of the esophagus) and so cannot take oral treatment--and must have an infusion.
I also have Ehlers-Danlos Syndrome (a genetic connective tissue disorder) and so have continuous, chronic dental problems and poor healing. My dentist (and oral surgeon) do not think I should take Reclast because of my high risk of osteonecrosis. I also have Leiden V Factor which makes me prone to blood clots. None of my doctors seem to know what medication I can take with the lowest risk of osteonecrosis. I currently take a calcium and mineral supplement (AlgaeCal), but don't think it will be enough. Does anybody have a suggestion for what I can take with the lowest risk of osteonecrosis?
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