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tarzannojane
Multiple Myeloma Discussion • March 26
Anybody elso out there with HIV and MM?
HIV+ for more than 30 years, with undetectable status thanks to ART. Dx of Stage 1-2 IgG lambda MM t(11;14) 18 months ago. Responding, although slowly, to Venetoclax/Dara/dex therapy for past 6 months. M-Spike down to 0.7, and recently increased Venetoclax daily dose to 800mg (up from 400mg). Tolerating this regimen fairly well. Very interesting science with respect to B-cells, T-cells, BCL2 and the connections between HIV and MM. Have not encountered anyone else with HIV despite numerous inquiries in support groups & forums, specialists at UTSW and Mayo.
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