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ArlMP
Multiple Myeloma Discussion • July 28, 2024
Managing Light Chain Escape: Experiences?
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Hello all! I was dx in 2009 with Kappa light chain IgG. SCT in 2009. Drug free for five wonderful years then relapse in 2014. Been off and on maintenance therapy since 2014. I have been doing really well with maintenance and currently on Darzalex injections every four weeks. My light chains have been in the abnormal range since February of this year. With low IgG levels for several years. My MM specialist ordered more testing done a couple weeks ago and my MM has now evolved into Light Chain Escape. Which I understand that my MM can no longer be monitored by blood tests but with BMB. Has anyone have this form of MM? How is your disease monitored? What treatment are you currently on? Side effects?
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