Diagnosed MM in Sept 2017, after a year of blinding back spasms, with 7 vertebral fractures. Misdiagnosed until a large parasegmental lung tumour was biopsed, and proven not to be a highly lethal Pancoast’s tumour, but rather a more tractable case of (11:14) MM. I reacted extremely well to 2 rounds of classic VRD, which crushed my M-band to nothing. A third round saw the Velcade give me peripheral neuropathy in my feet, which lingers unpleasantly, but I went to ASCT in April 2018. A durable remission has lasted so far. I’m on maintenance LEN, although I doubt it does much at this stage (my cancer cells will have evolved). I want Venetoclax, partially because it was invented by colleagues of mine….ironically I worked in cancer research for decades…..and it has shown pleasingly good results for us….I’m aware of course there’s a whole smorgasbord of new agents out there, and a slew of trials of the various combinations. I’m hoping in the meantime that CAR-T, or whatever evolves from it, gets both a lot better….and much cheaper!!