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High-Risk SMM: Conflicting Advice & Seeking Hope
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Hello! I’m newly diagnosed High Risk IgG Kappa light chain SMM (I say that so confidently, considering I’m only vaguely aware of what that even MEANS, lol). My regular Hem/Onc suggests a ‘watch & wait’ approach but when I got a 2nd opinion they said ‘treat now’, so now I’m waiting on a THIRD opinion. I feel scared & overwhelmed. So much information, so many differing opinions! I’m already tired of doctors & blood draws, & all I see is this stretching out lifelong before me like an inevitable death sentence. Please share with me some hope. I’ve been told that as I am very high risk (due to my TP53 deletion & only having 1 kidney) that although I’m technically SMM I might as well consider myself MM already. Anyone else in this (leaky! Lol.) boat?
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