Community post
Avatar
BarbaraH
Multiple Myeloma Discussion • August 21, 2024
High-Risk SMM: Conflicting Advice & Seeking Hope
AI-generated title
Hello! I’m newly diagnosed High Risk IgG Kappa light chain SMM (I say that so confidently, considering I’m only vaguely aware of what that even MEANS, lol). My regular Hem/Onc suggests a ‘watch & wait’ approach but when I got a 2nd opinion they said ‘treat now’, so now I’m waiting on a THIRD opinion. I feel scared & overwhelmed. So much information, so many differing opinions! I’m already tired of doctors & blood draws, & all I see is this stretching out lifelong before me like an inevitable death sentence. Please share with me some hope. I’ve been told that as I am very high risk (due to my TP53 deletion & only having 1 kidney) that although I’m technically SMM I might as well consider myself MM already. Anyone else in this (leaky! Lol.) boat?
Avatar

No comments yet.

Related Content