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Julzee
Multiple Myeloma Discussion • October 20
Concerns About Bone Health in Remission?
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I'm looking for a new hospital that puts emphasis on bone health. Currently, I'm at HUP with fabulous docs but when it comes to my bone health it's a miss. Even though I've been in remission since 9/23, I had another compression fracture in Feb and now somethings brewing agn. I pushed for new testing and pet scan showed tons of new lesions throughout. I'm awaiting a bone marrow biopsy, as well. If I am in "remission" and my dr kept saying everything was great, why is this happening and why isn't more emphasis put on bone health? I've also watched my m-spike increasing since May, but still in safe zone at .5 Background: In 2020, I started w/ xgeva which caused osteonecrosis. I now receive zomeda, but only twice a yr.
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