Community post
Sharing My Plan for a Revlimid Break
AI-generated title
I posted earlier asking for patient experiences with ceasing Revlimid and the length of time before noticeable relief from side effects. I received many helpful replies. Thank you. However, I believe that post was mistakenly deleted.
After consulting with my doctors at Moffitt, Sylvester (University of Miami), my local oncologist, as well as an Email with Dr. Derman in Chicago (he has some very recently published research on length of maintenance). I have decided to take a break. Though all of these doctors seemed to think most side effects from Revlimid would resolve within 4 weeks (though acknowledging the effects on blood count would take longer to resolve). I feel based on anecdotal responses it could take 4 to 6 months or longer.
I have a clear PET scan from October and I plan on having MRD testing as well in the next month or so. Based on those reports I will make a decision on how to proceed.
Here are a couple of links related....
https://ashpublications.org/blood/article/142/18/1518/497188/Lenalidomide-and-dexamethasone-maintenance-with-or
https://ashpublications.org/blood/article/132/23/2456/40023/Minimal-residual-disease-negativity-using-deep
No comments yet.
