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Lisaekok
Chronic Lymphocytic Leukemia Discussion • January 27, 2023
Diet and SMM: My Surprising Experience
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I was diagnosed with MGUS 12 years ago, and with SMM 1.5 years ago. I have been on a gluten free diet for 7 years and for the past two have also reduced cow dairy, grains, legumes (irritants for me). This did a tremendous job of reducing auto-immune issues I was having. I have been on curcumin, quercitin, vitamin D and K and other supps, plus delayed morning fasting, and low carb (to achieve level blood sugar) for years as well . All under the direction of a functional oncologic medical doctor/nutritionist (used while being under the care of an MM specialist, and the day I start treatment, I will do whatever the MM specialist says!). My SMM has been stable with M protein of 1.4, and I get checked every 6 months. What I found funny is that six months after I had hip replacement surgery (trauma and inflammation), a viral illness that inflamed my liver, and much worse eating habits (bad, I know-- I was using food as comfort)--I had totally stable, if not better, blood markers! I am not going to give up on healthy eating, because I truly believe that if and when my SMM turns to MM, I will be in better health to endure treatments that might be toxic to my liver and kidneys. The healthy eating will also keep me (I pray) from unrelated diseases like diabetes, which might complicate MM treatment. Plus, I just feel better when I eat healthy and practice other stress reduction lifestyle elements. But it makes me wonder what healthy eating's connection to MM progression really is, and I wish more studies could be done on food's effect on SMM.
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