Has anyone been diagnosed with extramedullary and non-secretory at you initial diagnosis? I was diagnosed due to a mammogram showing something, which led to a biopsy, that was a plasmacytoma. Once I saw an oncologist, they did a PET and found 3 more plasmacytomas. (breast, 2 on my thigh, and 1 on my lung that had done some damage to a rib) I responded well to treatment and had a SCT. I'm a little over 2 years out from the SCT and have a place coming up on my leg similar to what I had at diagnosis. They did a doppler/ultrasound and there's not a DVT. Due to crazy weather, most offices have been closed this week. I'm scheduled for a CT or PET next month, but feel like maybe it should be moved up. (I've also had some weird feelings in my ribs/side. I go back and forth between thinking it IS something and thinking I'm overreacting!) Thanks for any insights you may have to share!!! There doesn't seem to be a lot about extramedullary other than at relapse, so I would like to find some more information! Thanks, Karen