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Timyom
Multiple Myeloma Discussion • January 28, 2023
Managing SMM: My Watch and Wait Journey
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I was diagnosed in October 2020 with MGUS…then SMM month later. My symptom was a feeling of neuropathy in my feet. The neurologist determined that I didn’t have neuropathy. My BMB revealed 20%. I am considered intermediate risk with no genetic markers. I am anemic. I have a local hematologist that I see every 2 months, bloodwork every 2 months, specialist that I see every 4-6 months. I have had 2 PET scans (yearly intervals). Will have MRI instead of PET along with bone density test in April. I feel fine and am a active marathon runner. I take B Complex, Curcumin, pre and probiotics, multivitamin. My only prescription is a statin. I eat a balanced diet. My numbers rose rapidly at first but have stabilized the last 8 months. I am 70, my wife paseed January 3, 2021 after loosing her battle with Alzheimers.
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