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wgabelman
Multiple Myeloma Discussion • July 22, 2023
Sharing My 12-Year Journey with MM
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Hello, glad to join the group. (Thanks Audrey!) I'm 52 now in 3rd relapse, doing well overall. Diagnosed at age 40 in 2011, stage II, 70% in marrow, standard risk. Seven cycles of VRD put me into CR. No transplant due to liver issues. Stayed in remission for 6 yrs without maintenance meds. "Watch and wait" was recommended in 2018 when M protein reappeared as it was a slow progression. In 2021, symptoms were minimal and BMB showing only 20%, but this time showing quadruple hit (high risk). Started Dar-Kypr-Dex, achieved MRD after 5 cycles. Collected cells for future use as liver issues had resolved. Stayed on this for 20 months. Then had sudden, aggressive, painful relapse in Jan 2023 - no M protein detectable but kappa FLC shot to 1400+ in one month. So now it's converted to light chain MM. Started Empliciti-Pom-Dex with immediate response and back in remission. All symptoms resolved except still having numb chin/gums/mouth. Doctors are stumped about that as scans in January were negative. Personally, I married with 4 adult kids age 19-27, 3 still at home. I work part time as a nurse. After the aggressive relapse scare in January/Feb, my main desire currently is prioritizing my own self care and spending time in important relationships. Also, I'm learning/exploring the mind-body connection in how our thought life affects our physical health, good or bad....trying to battle this on all fronts. Grateful for 12 yrs with MM so far with a fairly good life. Looking forward to learning from each other in this group =)
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