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Lynn NY
Multiple Myeloma Discussion • May 30, 2024
Carvykti Experiences & Neuro Side Effects?
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Hi - I was diagnosed with Lambda Light Chain Myeloma in 2016 and have been on several therapies since and for the most part, have done very well. I have basically exhausted the less invasive options at this point and now it appears that my myeloma is becoming active again so my Dr. has suggested CAR T Cell Therapy with Carvykti. I am terrified of the possible neurological side effects, especially ones that cannot be reversed and I'm wondering how others have done on this therapy and if they have experienced the neurological side effects and if so, how were they treated, how long did they last or are they ongoing. Was it a difficult recovery? Did you need home assistance after hospitalization? I look forward to being on the other side of it and not having any treatments for a long time, but I honestly feel like I'll be walking into fire as I enter the hospital. Can anyone provide some feedback of the realities of this? Thank you. Wishing you all well!
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