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My Story: Managing cGVHD and Secondary Cancers
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Hi everyone. I was diagnosed in June 2022, along with my first bout of skin cancer, which required rebuilding my nose after taking it down to the underlying cartilage. After 7+3, FLAG, two rounds of Aza/Ven and consolidations, I finally got my bone marrow transplant in February 2023. I have adverse mutations, but have already outlived the probabilities. I have severe cGVHD of the gut, but Rezurock is taking care of it. I've had additional skin cancers, and just about to start treatment for an aggressive Gleason 8 case of prostate cancer. So my medical story is mostly about dealing with cGVHD and secondary malignancies.
But I'm happy to be here, very engaged in volunteer work, with family and with great friends. My wife Pat is the most amazing person of all to put up with all of this over time and to love me despite sharing this unanticipated journey. Where the path leads, we must follow. And now yet another new twist. I'm very lucky to have an incredible medical team at Duke Health who talk to each other, and to be blessed by resiliency. I love being a coach for HealthTree who have figured prominently not only in the work that we do, but significantly with some of the people that I've coached. I love playing piano for blood cancer patients at the hospital and for hospice. Kudos to everyone who deals in any way with this remarkable AML journey. We are fellow Travelers.
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