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kmburke60016
Multiple Myeloma Discussion • August 19, 2024
Finding Hope with a High-Risk Diagnosis
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Hello friends. I am a 53-year-old single mom to a teenage daughter. I was diagnosed on March 20 of 2024. I have high-risk myeloma, with four chromosomal anomalies. Currently on daratumamab, bortezomib, dexamethosone, lenalidomide. I had a spine surgery in April to stabilize the area where the myeloma ate my T1 vertebra. Planning a stem cell transplant for the end of October this year. I have no comorbidities. Every now and again, I look at my test results, genetics, etc. and search PubMed (I work at a med school). The words I see are not good. "Aggressive," "poor outcomes," "mortality." Not sure what I'm asking here. Maybe for hope? Does anyone here have a similar genetic profile?
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