I want to start a discussion about revlimid. The uber expensive maintenance drug. I have been on 10 mg since 01/01/2023 and will be on it until 12/31/2024. The symptoms have dominated my day to day since 01/01/2024. When I hit a year in everything was amplified. The fatigue, nausea, neuropathy, balance, depression, severe muscled cramps then the newest severe GI symptoms that make me afraid to be too far from a bathroom. I do have some good days but when my bad days come they are bad. I am still working and really hope that come January next year I will drop some of the symptoms; muscle cramps, GI symptoms, malaise. I do a lot of pouting by myself and know the revlimid is working great to keep my labs in a great place. But, geeze I am tired of feeling poopy most of the time. My pharmacist in Hematologist's office has been great and offered to reduce the dose. I do not want to because again my lab number are beautiful. A nurse at the infusion clinic said people she has worked with do experience symptoms stopping after 2-3 months. Has anyone gotten to the other side and can report on this. I am a rational person and an RN myself (24 yrs) so I know the value of treatment. My other side is a whiny baby and want to feel an equilibrium for a better quality of life. Maybe work another 2-3 years and retire while in remission. I could go on longer about how stifled I feel but I would like anyone to tell me their revlimid journey. Thanks