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Managing Life After CAR-T: Remission & Side Effects
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Had my CAR-T in June 2021. I'm still in remission as of February 2023. VERY grateful! I do receive monthly immunogloblin infusion to boost my immune system, and Zometta every 3 months. I suffer GI issues, poor balance, never ending sniffles / runny nose, and low energy, but I could not be more grateful because prior to CAR-T cell treatment, and starting at diagnosis in Fall 2017 I had received various other treatments (ie Revlimid, Velcade, Dex) and nothing worked. The last chemo treatment (Xpovio) was very rough on me, gave me no benefit so it and was discontinued after only a few weeks. Would like to hear from others about CAR-T post-treatment issues and how long did their remissions last.
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