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Allan
Multiple Myeloma Discussion • May 9, 2025
Considering CAR-T: What Was Your Experience?
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What has your experience been with CAR-T Cell therapy? 5 years ago I successfully went through a stem cell transplant. However, the Revlimid treatments have now reached the point where their efficacy is diminished, and the once-constrained multiple myeloma cells have "broken out" and formed a lesion in my brain stem. Radiation has shrunken the lesion, and it is not spreading. Yea!! We have switched to a three drug regime, Daratumumab, Pomalyst and Dexamethazone (DaraPomDex) but that too will lose its efficacy at some point. Because I will be 75 years old this year, and because I am in a healthy condition, I occupy a window of opportunity (which grows smaller and riskier) to undertake CAR-T cell therapy. I have been well informed as to the risks / side effects ranging from (only) headaches to Parkinsons. Please share with me your experience(s) with undertaking this treatment path so as to better inform me for what lays ahead? Thank you! Allan Shelley
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