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BassamChe
Myelofibrosis Discussion • July 19, 2024
Accessing Momelotinib: Any Advice?
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Hello my name is Farah Chebaro my dad has been diagnosed with Myelofibrosis stage 3/4 on April 30/2024. He has been diagnosed with RAR-ST 6 years ago and now the disease has progressed. He started Jakafi 2 months ago but he is extremely anemic and needs blood every few days. The dr suggested that we provide him with Momelotinib 200 mg. The medicine hasn’t been approved yet at the country we live in and I need help or recommendations where I can get him the medication.
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Mamazolo
Polycythemia Vera Discussion • July 7, 2024
Starting a Northern CA Support Group
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Hello. My name is Laurie Terzolo and I have Polycythemia Vera. I live in Northern California in Alamo and I would like to start a local group for support. If anyone has an MPN and lives in the area please reach out.
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Barbie
Chronic Myelomonocytic Leukemia Discussion • June 24, 2024
Sharing My Journey: Watch and Wait at 78
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Hi I’m cmml -1 diagnosed 5/2023 doing wait and c no stem cell said to old I’m 78 in good health anyway just going with flow this is to rare 4 in a million they don’t know much some treatment but not for me yet stay in touch everyone