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LaurieC
Multiple Myeloma Discussion • October 14, 2023
Concern About Rising Light Chains in Remission?
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Im a 59 yr old woman w t(4,14) HR lambda light chain MM. in remission after a ASCT one year ago. My kappa light chains are going up each month, altho m spike still 0; should I be worried?
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CoachB
Multiple Myeloma Discussion • October 14, 2023
Post CAR-T Vaccinations: Sharing Schedules?
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I'd like to know what vaccinations post CAR-T your center is giving and when as I understand most antibodies are lost since the CAR-Ts can't tell the normal from abnormal plasma cells. Please identify which CAR-T you had as well. TYIA.
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Reeree2305
Multiple Myeloma Discussion • October 14, 2023
Experiencing Rising Light Chains, No M-Spike?
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Hi I had a Plasmacytoma in July last year … very large … this year my bloods continue to go up no M Spike just high Kappa Light Chains and Serum B2 is high anyone experience this? Feeling little anxious about it
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SetyBlue
Multiple Myeloma Discussion • October 11, 2023
Melphalan Hair Loss: Regrowth Timeline & Coping?
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Let’s talk about hair loss from melphalan. I know, in a grand scheme of things, it’s a pretty minor side effect. However, it’s emotionally scary. How long does it take for the hair to start growing back? How did you deal with the hair loss?
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alanaspadalik
Multiple Myeloma Discussion • October 10, 2023
Screening Questions With a Family History
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Hello my mom has MGUS and my grandmother had Multiple Myeloma. What measures can I take as a 26 y/o healthy female. What lab work can I get drawn at my next physical? Do I need to go to a hematologist?
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Julia
Multiple Myeloma Discussion • October 9, 2023
Managing Leg Neuropathy: Any Tips?
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Hello all! I have a coachee experiencing neuropathy in the front of her legs. Anyone else? Also I wanted to know if anyone has something, vitamins, foods, topicals, drugs that they have tried or used to help. Thanks for your input! Have a great day.
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Chamamom
Multiple Myeloma Discussion • October 8, 2023
Kyprolis & Darzalex: Sharing Experiences?
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Has anyone been treated with Kyprolis and Darzalex and if so what were the common side effects. If completed treatment what were your overall results? Thanks