Eye Health and Multiple Myeloma

We believe the best insights happen when your lived experience meets your medical history. To unlock this study, we’ll help you securely link your records so we can see the complete story of your health. It’s a simple step that makes your contribution exponentially more powerful, helping us build a future of medicine that is as unique as you are.

About

Help Us Explore the Connection Between Eye Health and Multiple Myeloma! Did you know that treatments for Multiple Myeloma (MM) and its early stages (MGUS and SMM) might affect our eyes? Some patients experience conditions like cataracts or glaucoma, and we want to understand why. This study is led by Dr. Rahul Banerjee (University of Washington) and Dr. Andrew J. Cowan (Fred Hutchinson Cancer Center), and they believe your insights can make a difference. Together, we can pave the way for better eye care for MM patients.

9 minutes
Rahul Banerjee, MD and Andrew Cowan, MD, Fred Hutchinson Cancer Center

Details

Study Description: You are invited to participate in a research study aimed at understanding eye health and preventive care behaviors in individuals diagnosed with Multiple Myeloma (MM), Monoclonal Gammopathy of Uncertain Significance (MGUS), or Smoldering Multiple Myeloma (SMM). The purpose of this study is to gather information about eye health, medications, and quality of life among patients with these conditions. The study involves completing a cross-sectional survey that will take approximately 3-5 minutes of your time.

 

Study Procedures: If you agree to participate, you will be asked to complete a survey with 12 questions about your medical history, medications, and eye health. You will also have the option to connect your electronic medical records to the survey, allowing researchers to review your drug history and eye surgical interventions.

 

Inclusion Criteria: To participate, you must be at least 18 years old and have a self-reported diagnosis of MGUS, SMM, or MM.

 

Risks and Benefits:  There are no anticipated risks. While there are no direct benefits for participating, the information collected will contribute to improving eye health care for patients with MM and precursor conditions in the future.

 

Participation: Your participation in this study is entirely voluntary. You have the right to withdraw at any time without consequence.

 

Contact Information: If you have any questions or concerns about the study, you can contact HealthTree Patient Navigators (support@healthtree.org).

 

Consent: By participating in this study, you indicate that you have read this consent form, understood its contents, and voluntarily agree to participate.

Contact Information

For any questions or concerns regarding the study, participants can contact HealthTree Patient Navigators at support@healthtree.org.