Welcome to the Black Myeloma Health community!

You're not alone in this journey. Multiple myeloma is twice as common in African Americans compared to other racial groups, making up 20% of all myeloma cases, despite Black individuals comprising only 13.6% of the U.S. population. Black patients are also diagnosed at a younger age and often face disparities in care, including delays in diagnosis and limited access to cutting-edge treatments.

However, research show that with proper treatment, Black patients can have better outcomes than other ethnicities. We've been where you are, and through HealthTree University's educational resources, our Cure Hub initiative, and our experienced Coaches, we're committed to helping you not just survive but thrive.

Our Mission How Can I Contribute to a Cure?

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Evelyn Tucker

About Me:

I am retired and a mother/stepmother of three, and grandmother of six. In 2018, as a result of my annual physical, my Primary Care Physician pointed out a high value (total protein) in my bloodwork. She immediately referred me to a Hematology Oncologist, who "watched" me, through bloodwork, for two years. In July of 2020, anemia set in, primarily evident with a low hemoglobin value. I was then diagnosed with IgG Multiple Myeloma. I stayed on a VRD regimen for over a year and a half. In March of 2022, I underwent an autologous stem cell transplant. Presently, the myeloma is in remission while being kept on Revlimid (10 mg/day) maintenance therapy.

Jackie McFarlin

About Me:

Hello, I am a wife and mother of two college-age sons. I've been happily married for 35 years and was diagnosed with MM in July 2017, the year of our 30th wedding anniversary and six months before our trip to Jamaica to celebrate. Needless to say, we didn't make it that year but we're still going. I was having excruciating back pain and had an appointment to finalize kyphoplasty surgery, but before I was able to see the surgeon I ended up in the emergency room. That is when I was diagnosed with MM and quickly realized back surgery was not going to help. I spent a total of 37 days in the hospital where I had radiation and began receiving chemo (the triple cocktail) Velcade, Revlimid, and Dex. By April 2018, I was scheduled for an autologous stem cell transplant and April 27 2018 is my SCT birthdate. Because I had become extremely weak from cancer and the 37 days in bed while in the hospital I needed physical therapy prior to my transplant and for approximately ten months afterward. I am presently taking Revlimid for maintenance therapy. I have regained an enormous amount of my strength back but still, have periodic back pain. I make it a point to walk, stretch, and do something physical almost daily. I'm looking forward to living my best life and getting back to traveling. Jamaica is still awaiting.

Diahanna Vallentine

About Me:

I was a caregiver to my husband for 12 years. I am now a Board Certified Patient Advocate an Oncology Patient Navigator as well as a Financial Advisor of more than 22 years. As the HealthTree Financial Program Manager and lead Financial Coach, I help patients negotiate the financial side of cancer care to reduce financial toxicity. I can help you locate financial assistance to help you stay on treatment. Any financial questions you have from budgeting, SSDI, FMLA, SSI, Retirement, Medicare, Medicaid, Life Insurance, medical bill management etc., I would be glad to provide you with guidance. I look forward to assisting you.

Jasson Osborn

About Me:

I was diagnosed with MM at 41 yrs old after suffering a severe spinal fracture. Here i was a healthy, active, working mom of two teenage boys, and wife ... then boom! A biopsy was taken during my spinal fusion surgery and thats how I found out. I started treatment immediately and had my SCT 5/3/21. I handled everything very well and I am grateful for that! I believe my health, age and mindset were huge contributors to my success. My hope is that I can share and encourage others in my age bracket and just from a positive lens.

Tony Newberne

About Me:

HELLO- to those who are reading my bio. You will feel the positive energy that flows through me, and I hope you receive some after reading. As I experienced enormous health challenges, my motivation to impact lives only grows. My participation and commitment to professional and inspiring patient advocacy organizations include: HealthTree for Multiple Myeloma, Multiple Myeloma Journey Partners, Rare Disease Legislative Advocates, Patients Rising, IMF, and LLS. By speaking at various patient programs, coaching individual patients and providing awareness of services to healthcare professionals, I now contribute in ways that I could have never imagined. And most satisfying is the privilege to coach those facing cancer who need a mentor and role model to not only survive but to thrive. As a proud owner of a personal training/fitness studio, my love and passion for hiking, nature, animals, traveling, vegetable gardening, family, friendships, health, wellness and fitness permeates all aspects of my life. My expertise changes the lives of men and women, young and old, to achieve their optimal levels of fitness and wellness- while improving their outlook on life and sense of wellbeing. And I practice what I preach, adhering to a strict nutritional and fitness regimen. When not spending enormous time and energy in my fitness business or for cancer patient advocacy groups, I enjoy spending time with my partner of 12 years, beautiful Doberman and a good Netflix series. I was admitted to the hospital, and on September 18, 2013, at 39 years old, I was diagnosed with high-risk Multiple Myeloma. I had no idea what multiple myeloma was when I was diagnosed. At that time, my team of doctors had predicted that I would never be able to work out vigorously, much less to resume a personal training business. I accepted the challenge from my docs, LET’s GO!! It has been 7years since my autologous stem cell transplant. I continue with my business focused on total health and fitness. I work out for myself and train others on the same level of intensity as before my diagnosis. I still undergo monthly maintenance chemo—21days on and 7days off—because I’m considered A HIGH-RISK case. I have endured years of continuous rounds of chemotherapy, doses of radiation, months of rehabilitation, two back surgeries, toxic melphalan treatment with an autologous stem cell transplant, and a myriad of blood and platelet transfusions—not to mention back spasms that still haunt me. With strong determination and unwavering support from my faith, family, and friends, I refuse to be defeated. I am living proof that the human mind and body can overcome enormous physical and mental challenges, even in the most trying of circumstances. My goal is to do more than just survive: It is to thrive! And those of you on the other side of your computer screen… Yours should be, too! Believe, Fight, Survive…YOU got this! It is our responsibility as patients to learn as much as we can about multiple myeloma. Gaining knowledge about our disease empowers us to have more meaningful and confident conversations with our healthcare team. In closing, surround yourself with only people who are going to lift you higher. Positive energy only- Don’t cater to negativity. Remember to smile and always protect your peace! And be good to yourself. In good health, Tony

Sherry H

About Me:

I was diagnosed with MGUS in 2012. Five years later, I was diagnosed with multiple myeloma. Thankfully, I did not have any lesions. however, labs and a kidney biopsy revealed kidney involvement. Like all other myeloma patients I found this news shocking and very disappointing. My oncologist quickly devised a plan of action in which I was placed on the hallmark cancer drugs. Those drugs did not work in reducing the amount of disease that I had. After multiple trials of various medications with no benefit, and getting a second and third opinion, in 2019, I decided to undergo a stem cell transplant. Since that time, I have achieved partial response. Just recently, I learned that I have achieved an even deeper level of partial response. This journey has challenged me mentally, emotionally and physically but it has also helped me to do better with relying on my support group and my faith in God.

Joan Rodriguez

About Me:

I was diagnosed with Mgus in 2003, at the age of 38. My symptoms of neuropathy in my feet progressed in 2004. I had to give up my career of 18 years as a Dental Hygienist. Initially I was treated even though I had Mgus because my neuropathy was severe. We started with plasma apheresis, which was unsuccessful. Then we moved onto RVD. The Velcade at that time was a long infusion, it made my neuropathy worse. I had severe bone pain from the waist down. I ended up in a wheel chair, then walked with a walker for 3 years. I progressed to walk with a cane for 2 more years. We also tried Thalidomide. Ultimately, we stopped treating the disease. Instead we just treated the symptoms of severe bone pain with narcotics, for 6 years. It was a dark time in life and I had days of being bed ridden. After a severe reaction to one of the narcotics, I weaned myself off all of them. It was hard, lots of pain. Miraculously, I had 7 years of bliss. I even walked without assistance. I still did check- ins and blood draws yearly with my oncologist(MM specialist). In 2016 I progressed to high risk smoldering myeloma. I entered a 2 year clinical trial. I received a partial response. A few months after the trial ended, I became a active myeloma patient. I had rib and back compression fractures and multiple lytic lesions through out my body. I had radiation therapy and started induction for a autologous stem cell transplant. My transplant was in 2020,I achieved a complete response. I relapsed 21 months later. A MRI found a plasmacytoma in my spine and a new lesion in my hip. We determined at that point that I was non-secretory. I had spine surgery December 2021, replacing vertebrae with rods and screws. Afterwards I received more radiation and I was listed for Cart T therapy. I received my T cells (ABECMA) September, 2022. I did develop grade 1 CRS syndrome. I have achieved complete response. Sadly just months later I relapsed again. I started Teclistamab August 2023. This treatment was very tough for me. My wonderful, supportive and caring husband has been there with me the entire journey. He has been my caregiver since we wed in 2016. I have great faith! My circle is filled with a supportive church and loving friends. And after all the things I've been through, I still have intentional joy!! 20 years and counting

Laraine Jones

About Me:

I was diagnosed in June 2011. This diagnosis came after an inquiry by me with my primary care doctor about the fact that I noticed that I was losing weight. My weight loss was noticeably significant. Upon running a bunch of labs, my primary care doctor suspected that I might have MM because of the fact that I was very anemic and I had an elevated M-protein spike. My PCP referred me to a hematologist. Upon meeting with the hematologist, additional tests were done, including a bone marrow biopsy that resulted in a positive MM diagnosis. Of course I was initially in disbelieve of the diagnosis. I kept thinking to myself that perhaps the doctor made a mistake. But eventually I realized that there was noting for me to do but to accept my new reality. This began for me a journey to learn all that I could possibly learn about MM by reading the educational materials published by the MMRF, LLS and the IMF, as well as reading books written by my fellow MM warriors such as the late Pat Killingsworth. I also joined a number of Facebook MM Support groups. I began my first line of RVD therapy in July 2011. This was followed by a SCT in November 2011. Post my SCT, I began Revlimid maintenance in June 2012 and remained on this therapy until June 2016, when I relapsed due to a gradual uptick in my M-protein. I eventually began a new therapy which included Daratumumab + Pomalyst + Dexamethasone. I have been on this therapy since April 2017 and continue to have a very good response to my treatment. I now live a 'new normal' active life able to enjoy activities such as photography, golf, outdoor and indoor biking, swimming, walking as well as being active volunteering with my church and sorority. I have learned so much because of this journey and, needless to say, I now have a far greater appreciation for this thing called life!

Shelly Ford

About Me:

A Journey of Resilience and Hope Hello friends, I wanted to share a personal story that I hope will inspire and connect us all. In September 2021, at the age of 54, I was diagnosed with Multiple Myeloma (MM) after numerous visits to my primary doctor, orthopedic, chiropractor and spine specialist. My journey began with unexplained back pain that eventually led to a spine fracture in February 2021. Despite being under the care of specialists, I experienced additional compression fractures and abnormal ferritin levels, which prompted a referral to a hematologist in August 2021. After further testing, my diagnosis was confirmed in September 2021. I began treatment with Revlimid, Dexamethasone, and Velcade, and I am grateful to share that I achieved a complete response by December 2022 and remain in remission. Although I have decided not to undergo a stem cell transplant (SCT) at this time, I recently sought a second opinion and had a bone marrow biopsy. Throughout this journey, I have learned the importance of researching and educating oneself, and I encourage everyone to ask lots of questions during medical appointments. As a nurse and former administrator for a memory care community, I continued to work full-time during my treatment. Recently, I have taken time off to focus on my health and well-being. I am blessed with two adult children and three wonderful grandchildren who bring joy and purpose to my life. My hobbies, including paper crafting, sewing, and baking, continuing to be a source of comfort and creativity. My grandchildren keep me going, and I cherish every moment spent with them. I look forward to sharing more of my journey with you and assisting you with yours. Together, we can support and uplift each other as a community. Warm regards, Shelly

Shirley Cotton

About Me:

Diagnosed with high risk, IgA Kappa MM in 2017. Had induction therapy RVD 4 rounds, followed by ASCT in November 2017. Have been in remission since April of 2018 and since then on maintenance chemo of Revlimid 10mg. Switched to 5mg early 2022. Relapsed late November 2022/presently in treatment with Pomalyst, Darzalex Faspro and Dex. Doing well - In June 2023 down to monthly treatment. I am married to George who has stuck with me through all MM related procedures/lab tests/follow-up visits etc. We just celebrated 25 years of marriage. Before marriage I entered college as a music major, graduated with a communications degree but later health care called my name and I answered. I worked in multiple settings as a physical therapist assistant for 33 years Los Angeles and Detroit area-pediatrics, geriatrics, hospitals, out-patient clinics and home care. When asked at 62 "why retire Shirley?" My answer was, "why not? and because I can." (I can be a little sassy at times) I loved caring for people, but it was time to retire. Husband had already retired 10 years prior, so we had the opportunity to travel some for 2 years- cruising mostly. Then came MM. Since then, I characterize my life as a journey, with ups and downs but I am blessed, nonetheless. I am a believer and my faith in God guides me to live one day at a time, listen to my body, listen to my doctors/family and to do my part in the process (meds, exercise, educating myself about MM and certainly ask questions and advocate for myself. Each day I believe I learn and improve in all of those areas sooooo I'm wanting to share with others along the way. To give and receive encouragement on this "journey" is important and being part of this process is a privilege. Looking forward to travel in a month or two.

Novlette Griffin

About Me:

I was diagnosed with Multiple Myeloma in 2016, also had my stem cell transplant the same year, so far I am still in remission and has been on Revlimid 10mg as maintenance. I have a very supportive husband and family which makes my journey much easier. I love helping others while on there journey. I can support you with emotional, spiritual, or just someone to talk to. I continue to educate myself with information regarding MM, we cannot have too much information regarding this disease. I believe the mind and having faith is half the battle, which has help me on this five year journey. I will do whatever I can to help others , so you can reach out to me.

Cassandra McDonald

About Me:

I was diagnosed in 2018 with IgA Kappa and IgA Lambda Myeloma or "Bi-Clonal" Smoldering Myeloma which since has progressed. My experience as a myeloma patient has solidified my belief that when life fights you, you have to fight it back. My biggest challenges are not the diagnosis but finding a specialist who spends the majority of their time researching myeloma cases and actually "listening" to me and not just looking at labs and symptoms to equate to how I'm feeling. However, I am blessed because my sons and grandchildren keep me going, and plus I still believe I have so many more years ahead of me to love and to give of myself. I am appreciative that I found the Myeloma Crowd, and that they have given me a voice. It is my pleasure to help you. Together, WE CAN!

Valarie Traynham

About Me:

I was diagnosed with myeloma in 2015 at 42, after experiencing severe fatigue, frequent infections, and back pain. I was shocked, overwhelmed, and felt alone. I quickly began treatment with upfront Thalidomide, Velcade, and dex (TVd). That regimen quickly changed after getting a second opinion. I switched to Revlimid, Velcade, and dex (RVd). I stopped responding to that therapy after five cycles. They then changed me to Kyprolis, Pomalyst, and dex (KPd). That line of treatment lowered the disease burden so I could undergo an autologous stem cell transplant early in 2016. After the transplant, I completed consolidation therapy of another 12 cycles of KPd. After completing minimal residual disease (MRD) testing, I found no evidence of disease (NED), which I have maintained since. I am currently on maintenance Pomalyst.

Gatha Stephens

About Me:

Awareness for mother diagnosed with myeloma. Strong desire to help others fight this horrible disease. I love being a health coach and focusing on working out with special populations, nutrition and providing empathy to caregivers or patients. My goal is to improve my life so that I can be a better support for others. Certifications: Fitness Trainer, Master Certification in Human Resources, Certified Anxiety Coach, Certified Health Coach. Gaye Stephens, MBA

Andréa Ellingen

About Me:

II BELIEVE A POSITIVE OUTLOOK IS EVERYTHING.... 2024 I am still undetectable after RVD treatment for 4 months NC, then a SCT at James Cancer Research Hospital (Columbus, OH) I was only in the hospital 9 days before shorter in hospital stays where expected. I AM using Revlimid as a maintenance treatment with minimal side effects ( intermittent low white count) 2017 An Allergist found blood level irregularities during a routine allergy test. (Prep to retire always sick) He sent my labs to hematologist who started doing preliminary checks. Oct 2017. Confirmed MM stage 3! I elected to start treatment Jan 2018 Wilmington NC. In March 2018 blood levels returned to a good status. May 2018 to myeloma specialist. Stem cell transplant July 2018. The James cancer CTR OSU new birthday Aug 10th 2018. Hospitalization SCT 9 days. Undetectable since Oct 2018. One treatment plan Revlimid, VelCade, Dexymetrozole. From stage 3 Oct 2017 to Remission May 2018. I had all precursors from age 7 now 63. No relapses. On maintenance Revlimid. 2024 still undetectable WITHOUT relapse.

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