Your Feed

Filter by
See content from
Back to the latest
Avatar
Lyn4750
Multiple Myeloma Discussion • August 31
Lenalidomide side effects
I’ve been on Lenalidomide 15 Mg 21 on 7 off for 8 months. Have constant yellow dysentery on the 21 days on. Tapers off on the 7 off. Finally had a new doctor prescribe Colestipol tablets twice a day. Some relief the first month. They cut back the Lenalidomide to every other day but Colestipol not working. Is this a sign I should stop the Lenalidomide? What have others experienced.
Avatar
DebC65
Multiple Myeloma Discussion • August 27
Acupuncture?
Has anyone tried an Oncology Acupuncturist for BIPN? Do these nerves in the legs and feet ever regenerate? I refuse to take another drug…Gabapentin was prescribed.
Avatar
Daddie
Multiple Myeloma Discussion • August 27
Kyprolis
Experiences with this drug
Avatar
Joseph
Multiple Myeloma Discussion • August 24
Darzalex Side Effects: Heart Rate, Headaches, & Heat?
AI-generated title
I was diagnosed withMM in January, 2024. Followed by 12 weeks of induction therapy and then ASCT in June. Took Revlimed as maintenance therapy until June, 2026 when I became neutropenic. Restaging at 24 mos showed healthy bones, no kidney issues and full remission. I am very active. Transitioned to Darzalex Faspro and remain on weekly injections for 4 more weeks, then a month biweekly, then monthly. Question I have is that I seem to be more sensitive to heat while exercising and my heart rate is more elevated than previously. I sometimes have a headache during the week. This is new since starting Darzalex.
Avatar
violetLobster
Multiple Myeloma Discussion • August 20
Coach meeting
I can never find our meeting on the website