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Hello all, I've been SMM for more than 5 years. I am beginning to have reoccurring back pain. I have upcoming appointments for Bone marrow and MRI. That said, I recently threw my back out and can barely move, walk, lay, or sit (don't know how I'm going to do these tests). I walk slowly around my home and am losing all muscle in my legs, arms, abdomen. Any recommendations for any exercise that doesn't cause added pain?

Hello, I am writing on behalf of my mom who just recieved her diagnosis in early January. Her Myeloma is very progressed, and she is entering into cancer treatment under weight and in a lot of pain. Would any of you be willing to share what your pain protocol is and how you have kept up your appetite?

Hello, I was newly diagnosed with lambda lightchain in June 2025. I had had the disease for some time apparently, was in kidney failure, and had many lesions and vertebral issues. I have responded very well to DRVd, with serum tests showing normal light chain numbers. At six months they did a biopsy but did not get enough material to get an accurate read on MRD. The doc's don't seem to want to do another biopsy because of the serum numbers. Does that make sense? They are continuing with quadruplet therapy for now, beginning cycle 7. They gave me a full two months with no treatment due to stem cell harvesting, shortly after the failed biopsy and other tests required for that. Thoughts??? I don't know why we wouldn't do another MRD biopsy.

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Just looking to see how you handled the harvesting and the transplant. Anything you would do differently? Any suggestions ? I start harvesting next week followed by the transplant.

I’m wondering if anyone in this group has experience with carfilzomib, im currently using this med as part of a bridging treatment. Just wondering, Cheers

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Hi everyone! Has anyone in this group received clonoSEQ tests and would be interested in sharing about their experience? Thank you!

Hi - 'finally reaching out on this message board as a 58-yr-old wife of 63-yr-old husband diagnosed with smoldering multiple myeloma in Aug. 2024. He has multiple comorbidities & insists on only very locals dr's. We've been testing & consulting with 2 different dr's with whom we've not been thrilled. New dr consults scheduled for Feb. following next wk scan we requested to clarify inconclusive findings on other recent scan types. 1 dr who is soon leaving has recommended darzlex faspro even before we requested scan. We're holding off until we have test results & subsequent consultations. I work full time, trying to hold off retirement until my target of reaching 60, but often feel I'm spread too thin to be the best me for this journey.

Hi I am in New Zealand where Daratumumab is not funded. I have paid for my induction and for monthly maintenance for 4 months. However, this is now becoming very expensive at over $10,000 per month and I wondered if any research has been done on having Dara every two months instead of monthly and if this could be worth considering? I had reactions to both Lenalidomide and Bortezomib and the Dara has taken my paraproteins down to 4.

I was on Zometta monthly following my stem cell transplant in 2011. That lasted for about 5 years at which time I was told that Zometta was not supposed to be used for long periods of time. Then in 2024 after a visit to Dana Farber institute I was told that it was ok to use Zometta again and I was started on it every three months.

Good afternoon, my husband was diagnosed with end stage kidney failure and multiple myeloma on 8/2024. His kidneys failed due to cancer and is now on PD dyalisis. Anyone with similar outcome? Do kidneys get better?

I'm on MM medication, too old for a transplant, and running out of options. I'm old and lived a great life. I'm having difficulty with death and dying issues. Ketamine is the only psychedelic-like medication available in my state. Are there any of you who have used psychedelics, and what is your experience?