Your Feed

Filter by
See content from
Back to the latest
Avatar
Crisbanta
Multiple Myeloma Discussion • April 1, 2023
Balancing Dehydration and Sugar Concerns?
AI-generated title
So, dealing with dehydration. Bloodwork says my kidneys are still okay. Question: doc says take electrolytes daily to counter the dehydration. All I can find that I can tolerate is something for kids called KinderLyte. It has dextrose, though apparently not as much as it tastes like it has. But, aren't we not supposed to take in sugar because it feeds cancer? Have you all completely cut sugar out? I largely have until this. (I know some of the other electrolyte drinks use fake sugars, but I can't tolerate the sugar substitutes.) I feel like I have to decide between risking more cancer or getting so badly dehydrated that I end up in crisis and even possibly damage my kidneys. Any help?
Avatar
GoodDay
Multiple Myeloma Discussion • March 31, 2023
Discussing Diet & Exercise for Side Effects
AI-generated title
Opening up for discussion sharing thoughts on diets, dietary changes or specific foods people have found helpful for side effects or that they feel are attributable to long term progress free Myeloma? My husband, diagnosed July '22, started Vegan, whole food, plant based diet. He has had terrific relief from the neuropathy in his feet that was presumably result of the Melphalan given during ASCT. He has been starting his day juicing celery before eating anything. When he doesn't juice for a few days we usually see a spike in his bilirubin. Correlation or coincidence? Not sure, but we are going to continue just in case. Also, started yoga, strength training and Peloton.
Avatar
GoodDay
Multiple Myeloma Discussion • March 31, 2023
DRAMMATIC Trial Question: Is Dex Required?
AI-generated title
My husband diagnosed MM July '22 at age 53. He did Induction RVD followed by ASCT. For maintenance therapy he was offered a clinical trial Revlimid and Daratumumab. On Dar injection day we were shocked that they were adding Dex. and Singulair (Black Box label warning on this). Neither drug is not listed in the clinical trial information and we were told this study didn't include Dex. The Trial name is DRAMMATIC. Is anyone in this study and if so, is Dex being required? We are considering exiting the trial. Also, considering getting a second opinion on his MM treatment.
Avatar
roseLemur
Multiple Myeloma Discussion • March 30, 2023
Seeking Online Caregiver Support Groups?
AI-generated title
I am wondering if anyone knows about any caregiver support groups specific to Myloma that are online and facilitated. I’m not sure why this is showing up as Rose. I have my own account and my name is chaya.
Avatar
janetlopp
Multiple Myeloma Discussion • March 28, 2023
Frequent Infections With SMM: Anyone Else?
AI-generated title
I was diagnosed with SMM in July 2020. Recently it seems I'm getting frequent infections because of my suppressed immunity. I was wondering if this is a common experience among other people in the group?