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KimDeathMidwife
Multiple Myeloma Discussion • June 22, 2023
Creating Comfort for At-Home MM Hospice?
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Hello dear ones. I am trying to get some type of list of what would be needed for my person who wants to die in situ at home and has MM. There is limited hospice services available in her area so we will need to have a lot of this in place. Any lists beyond that of hospital bed, hoist, wheelchair, commode, walking aids, and medical equipment such as drip stand, oxygen, bathing, and feeding equipment... specific to MM.
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GoDucks
Multiple Myeloma Discussion • June 21, 2023
Managing Revlimid Afib and Dex Crash?
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has anyone developed Afib or other arrhythmias from long term Revlimid use? I tolerate treatment pretty well except for more frequent episodes of Afib and the dreaded Dex crash about 48 hrs after I take it.
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GoDucks
Multiple Myeloma Discussion • June 21, 2023
Experiencing AFib on Revlimid?
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I had an ASCT in 2017 and did well after - maintenance with Revlimid until March 2020. Anticipating COVID hitting the US my oncologist and I decided to take a break since my M-spike was low and stable. Started treatment again in January of this year since M-spike was starting to rise. Currently doing DaraFastPro and Revlimid (10 mg 14/7) with 20mg Dex on Dara injection days. My biggest concern is the effects of long term Revlimid on my heart. I had AFIB when I was in the hospital for my ASCT and subsequently had 2-3 episodes a year. These episodes were basically "self inflicted" if I got dehydrated and tired. Since starting treatment again in January AFIB episodes have become more frequent. Would like to hear if anyone has had similar experiences and if the episodes became less frequent once Revlimid was stopped. My cardiologist is not concerned at this point and my oncologist doesn't think it's related to treatment but info on long term Revlimid use indicates arrhythmias can occur.